i hate being sick all the time

Since i was little, i would only go to the hospital about once a year and get a "tune up" as my parents would call it. Most of the time it didn't take up any school and i could still have a simi normal school life, only missing every now and then for cf sickness.Before ivs could be more portable i had to take a massive iv pump in a bag to school for a couple weeks when home iv's had to be done at school. I was only in 3rd grade so it was not a big deal. Everyone knew me basically my whole school career as "the girl who is always sick,absent,or late." I was late almost every day because of morning meds and treatments. I didn't know that those days were in reality a lot easier then. Now If I'm sick its for about a week or more at a time. Therefore, i miss that much of school and it is very hard to catch up. Also Hospital stays are more frequent, and longer. Because Junior year is supposed to be extra hard it is not going to be easy to miss that much school. Since school started this year i have already missed 5 days. I'm just worried that because I'm getting sick i need to go once again back to the hospital, but i cant afford to miss a month of school. (the amount I'm guessing i will be staying this time..ugh) with my luck my PFT'S will be like in the 20's. When I'm relatively "healthy" I'm in the low/mid 40's.(just so u know where i am at) I'm thinking for the rest of this year i should be home schooled. Never in my life have i been. My parents wanted me to live a normal life as much as possible. But when stuff gets bad i guess they might consider it. It is so hard to play catch up in school every time i miss. And i haven't been to the doctor in a while(UGGH dreading that) so i will most likely get shipped of to Houston for a 2nd go at an evaluation for my lung transplant.joy.........